So I found a couple really good sights for information for families with children with AA. They are Children's Alopecia Project. - http://www.childrensalopeciaproject.org/ & National Alopecia Areata Foundation- http://www.naaf.org/ . They have some really great links and information. The National Alopecia Areata Foundation even provides a schoolpack that we can print out and give to Megan's Kindergartin teacher next year. Which has information for the parents and teachers on how to promote awareness and educate the other students that Megan will be in class with and also areas that they can promote self esteem within her. It is also very educating for moms and dads as well. Anyway on to the good news, when I was checking out these sights the other day I came across a link for a sight called Little Heroes Project, it is a non-profit based organization made up of professional photographers nationwide that provide free photo sessions to children who suffers from any type of serious illness or life altering disability. Not really thinking about I filled out an application for Miss Megan. Well not even two days after that I received an e-mail stating that she had been accepted for a Little Heroes photo shoot. They had a whole list of participating photographers in Nebraska, so we e-mailed back with the 3 that were the closest to us. So this was some great news after the week we had last week. Looks like they will even shoot her with her siblings, so the boys can be part of this! If you have time you should really check out the sight, they have some great stories on there and feature different kids every week. http://www.littlestheroesproject.org/ . Read the story about the founder it is heartwarming and very awesome because she is only 17 and started her life out with a medical issues as well.
Cool! You'll have to bring the pictures to the office when you get them.
ReplyDeleteHi everyone!
ReplyDeleteI am Jeff Woytovich, I am the founder of the Children's Alopecia Project. I wanted to let everyone know that we have our first convention taking place in Philadelphia called, Alopeciapalooza! We will hold this on August 7-9 and it is at the Sheraton Society Hill.
We help build self-esteem, provide support and raise awarenss. Be she to visit our website and register so you can take advantage of our CAP Kid Connection program. www.childrensalopeciaproject.org
Please feel free to contact with any questions or even if you need someone to speak at your school. Self-esteem is so important, we want to help your children now so they become confident teens and productive adults and the advocates for alopecia in the future.
Take care everyone,
Jeff Woytovich